I thought I’d tell you a little about the reception this web site has had since I started posting about a year ago.
There have been some wonderful success stories where someone decided to look for a different answer than the one handed to them by physicians, and, rather than rely on a succession of lethal and ultimately ineffective drugs to handle Rheumatoid Arthritis, found permanent health by modifying their diet.
Like Jen, who had been suffering with RA for three years and, rather than begin a new biologic to replace the one she had been taking which had lost its effectiveness, she decided to take matters into her own hands and do some research.
She found us and others online who encouraged her to find her own way and assured her that she could indeed triumph over a dreaded disease by making different food choices.
Like all of us who have made the leap from flares, fear and fatigue to good health, Jen has to handle the ups and downs and complexities of learning to work with her immune system by finding the right changes to her diet. As food growing and processing methods change, as well as our bodies over time, control can seem like an ongoing work in progress.
But the same is true of the deadly drugs that are the current medical alternative. After the immune system is disabled by biologics, it adapts to the circumstances in the body and comes roaring back again. The drug in use then becomes ineffective and we have to either increase the dose or find a new drug and start the process over again. That is why the users of pharmaceuticals have to change drugs so often.
There will never be a time when the user of a biologic can assume that a prescribed drug has solved the problem forever. That person will always, at some point, need a new drug. Big Pharma, as hard as it tries, can hardly keep up and new immune system supressors seem to show up daily.
Sooner or later the rope will run out and biologics will no longer be regarded as the solutiion so many today think they have found.
Not all of those who landed on this website have had the reaction that Jen did.
There have been some who had early success by modifying their diet, hit a road bump, and decided that it was easier to just take the drugs. I have to admit that I did the same thing myself until it finally sank in that drugs would never be the answer. I didn’t like the idea that I would spend my life exchanging one med for another, hoping that the disease didn’t progress and that the drugs didn’t kill me. For me, as for Jen, the effort to find a way to work with my body was, in the end, the only way to go.
It’s as though our body makes a decision at the molecular level and nothing in the medical arsenal will override it for long. We have to work with the set of circumstances it gives us by addressing the immediate reason for its annoyance — food intolerance. Our bodies repeatedly reject a drug solution as though trying to let us know that pharmaceutical weapons will never control it.
There has been resistance from other areas, also.
There are many who simply don’t want to hear the message that those with autoimmune conditions can often control their own destiny. Chief among those are people and organizations who profit from ill health. When you think about all the money you and your insurers spend on drugs, doctors and appliances to control the condition, you will know who they are. Autoimmune disease is big business.
To be fair, there are many in the medical profession who simply don’t know (or won’t believe) anything they weren’t taught in medical school. And one thing they never learn in medical school is that the patient may at times be better off without them.
But Big Pharma doesn’t deserve a free pass. They know that diet is a major influence in the control of Rheumatoid Arthritis because they read the same research I do. Think about the cost of the prescription meds you take. Pharmaceutical companies are among the most profitable on the planet. And to an astounding, unconscionable, degree, they underwrite medical schools, medical education and physicians’ practices.
The next time you’re in a doctor’s office, take note of the ads for Big Pharma. Their logos might be on the clock on the wall, prescription pads, pens, magazines, or anywhere else. You never know how obligated the physician feels for all the largesse s/he has accepted from the drug companies. Research says the doctor will say the answer is ‘none at all’ but his or her documented prescription practices tell a different story. If you see no pharma freebies anywhere in your physician’s office, you’ve found a doctor who is unlikely to be conflicted about your best interests. You may have found someone you will want to keep.
There are others who are resistant to the idea that they can deal with RA on their own.
Some patients prefer to be patients. Being out there on our own is hard work and letting someone else take care of us is such a seductive idea that we can easily be blinded to the true cost. I will always regret that I couldn’t convince my mother to try it my way, even as she saw me break free of the condition and as her own condition worsened. She never trusted herself to handle her own life, despite daily evidence that her physicians had no good alternative.
I also regret that it took me as long as it did to trust my own body and give up the toxic drugs whose impact, in the end, was worse than the disorder.
There are others who block the message of this site for an entirely different reason. Sadly, they have been sick with RA for a long time, they are physically and economically heavily invested in the disorder, and they don’t want to hear that they could have done anything differently. While those persons have my deep sympathy, I would ask them to give themselves the opportunity to feel good again, drug free. Changing one’s diet may be difficult, and understanding the intricacies of one’s body may seem impossible some days, but it is a no-risk proposition.
The advice regarding diet and Rheumatoid Arthritis on this website has got me – and who knows how many others – banned from numerous RA forums. Some, like the forum hosted by the Arthritis Foundation, are heavily loaded with ads for drugs.
Last week Google sent an email notifying me that my (expensive) little ads for this website violated their requirement that I have the approval of some pharmaceutical institute to advertise a ‘cure’ for RA. Huh … ??? Eventually, they took another look and decided there was no violation of their rules. Never found out why Google, which runs millions of ads for health care, happened to send a rejection notice to us.
I wish I heard more from you all. I know you are out there because hundreds of you are subscribers, but most days it feels like I’m all alone in a vacuum. How are YOU doing?